Genetic data sharing by clinical laboratories in Canada: A position statement by the Canadian College of Medical Geneticists.

Canadian clinical laboratories are advised to adopt ethical, secure, and effective genetic data sharing practices to enhance diagnostic accuracy and genomic medicine progress.

• Why it matters: Sharing genetic data is crucial because variant interpretation evolves with new evidence, yet practical guidance for implementation remains limited, risking ethical and privacy concerns.
• What they did: The CCMG developed a national guidance framework through expert consensus, involving six meetings with diverse professionals, drawing on existing evidence and external review to support data sharing.
• The result: The guidance emphasizes ethical principles, proportionality, and governance, aiming to improve diagnostic accuracy, equity, and trust, and to align Canadian practices with international standards.